Sarah is currently the interim Manager, Research Ethics & Compliance at Island Health. She serves as a co-Director on CAREB-ACCER, the Canadian Association for Research Ethics Boards. She is Chair, and member of the Advisory Council for Research Ethics BC (REBC), the provincial, harmonized system for research ethics review of multi-jurisdictional studies involving human participants supported by the BC Academic Health Science Network. Sarah has been involved in several educational opportunities at a leadership level to enable research ethics colleagues, both within BC and further, a face-to-face opportunity to network, learn, and reflect on current topics in research ethics. Sarah’s work with REBC has demonstrated to her the importance of building and developing relationships across the research landscape. Through these opportunities to share resources, knowledge and expertise, connections are fostered which strengthen the application of policies and guidelines around research ethics. Sarah believes in supporting continuous partnerships that in turn support innovation and research while strengthening research participant protections.
Mark Barnes is the Director, Office of Research at the University of Northern BC (UNBC) where he leads a team of professionals who provide support to UNBC’s research community to enhance the institution’s research capacity. Additionally, he works to increase the awareness of collaboration opportunities with UNBC partners to facilitate the translation of innovative research into useful and workable solutions. He also manages the intellectual property portfolio for the institution. Prior to joining UNBC, he held multiple leadership positions at the BC Cancer Agency – Centre for the North in progressively senior roles, including as a member of the Research Leadership Team, Clinical Trials Coordinator and Interim Centre Manager. He is a Certified Clinical Research Professional (CCRP) and he holds a B.Sc. (Biochemistry and Molecular Biology), a M.Sc. (Biochemistry) and he is currently completing an M.B.A. His involvement in research ethics comes from his experience conducting clinical research, as well as working in research administration for 10 years.
Jude Kornelsen, is a health services researcher with an interest in sustainable rural health care, maternity and surgical care, rural health planning and community and policy engagement. She prioritizes working with rural citizen-patients and communities and the co-creation of research. She is an Associate Professor in the Department of Family Practice, UBC where she is Co-Director of the Centre for Rural Health Research, an interdisciplinary key-stakeholder engaged clearing-house for identifying research needs. Jude is also an Honorary Associate Professor, Sydney Medical School, Australia.
Sunny Loo is a volunteer with the Patients as Partners/Patient Voice Network, a member of the BC SUPPORT Unit Patient Council, and a resident of Sooke on Vancouver Island. A pharmacist by training with a focus on technology and innovations, Sunny’s 35 years in the profession included development of innovative patient support programs, implementation of medication management pilot programs in several provincial jurisdictions, and participation in the Ontario e-Health initiative as Director of e-Health for the Ontario Pharmacists Association. Currently Sunny and his wife operate a consulting practice that strives to better understand physician practices. Sunny is a patient living with a rare form of vasculitis (Wegener’s Granulomatosis) for the past 10 years. Having been a part of the healthcare system as both a professional and as a patient, he looks forward to sharing his experience with others. As a member of the Patient Voice Network, Sunny sits as a Patient Advisor for the Vancouver Island Health Authority Quality Operations Council and the Therapeutic Stewardship and Safety Quality Council. Sunny is a current member and a past co-chair of the BC SUPPORT UNIT Patient Council and is actively involved in a number of Patient Oriented Research related initiatives. Currently, Sunny is a completing an internship as a peer to peer (patient) researcher with the (PaCER Patient and Community Engagement Research) Innovates Program (University of Calgary).
Karin’s expertise is participation research, policy and practice of participation, and health in the BC health care setting. She currently examines what and how engagement is enabled and enacted in the spectrum of Quality Improvement, Evaluation and Research in the Interior Health system. Karin has a role as Patient- & Stakeholder Engagement (PE) Lead, Interior Health, a part of the BC SUPPORT Unit Interior Centre. For Patient-Oriented Research, Karin works in close collaboration with the newly formed Interior Health’s Patient Engagement in Research (PEiR) Committee. Karin is also an Embedded Patient Engagement Scholar at Interior Health, and a Post-Doctoral Fellow at Maastricht University in the Netherlands, with a focus on creating a learning health system. Karin supports physicians, medical residents and students, and other clinicians in research capacity building. Karin is an Adjunct Professor, Faculty of Medicine, UBC and has gained clinical experience as a Physiotherapist for 18+ years and as Advisor, Health, Safety and Prevention, Interior Health/Northern Health, at Workplace Health & Safety.
Jim was diagnosed with Alzheimer’s disease and has since remained active as an advocate with a focus on reducing stigma and shattering stereotypes around living with dementia. In addition to his volunteer committee work, Jim collaborates in various roles with research projects and as a mentor to researchers. He is first author of an article, is a co-author of three others and has written the foreword for two texts. At the invitation of the University of British Columbia’s W. Maurice Young Centre for Applied Ethics, Jim was a Visiting Community-Based Scholar in July 2019 where he focused on dementia research and issues of consent and ethics. Jim has been the recipient of many awards including the Governor General’s Medal for Volunteers (2016) and the Change-Maker Award from the Neurological Health Charities of Canada for dedication and commitment to improving the lives of people impacted by neurological conditions (2013).